Tim Johnson

Looking to Fellowship and Compassion to Ease the Pain

Today I have been in self-quarantine for almost nine weeks, parallel but completely separate from the pandemic.

Today I have been in self-quarantine for almost nine weeks, parallel but completely separate from the pandemic.

Each day, I wake up and read about the virus, mostly on medical websites, but like the rest of the world we are all starting with the same naïve level of knowledge about this unique pathogen. No two people in any family, town or career are affected in the same way by what seems to be a global reboot.

Here is a story from my front line.

Although I am a doctor, known to some of you from my 20 years working on Martha’s Vineyard, I have been experiencing this pandemic as a patient. Without going into details, in early February I had surgery for a slowly growing tumor that was putting pressure on one of my cranial nerves causing half my face to contract into a spasm. One problem led to another after surgery; I developed meningitis and was laid out flat for almost three weeks with more pain in my head and neck than I ever imagined possible.

I am now a week out from my fourth surgery, trying to heal the leakage of brain and spinal fluid from my nose and ear.

During these past two months of self-isolation, as I try to avoid a second bout of meningitis, I have entered the medical system as a patient rather than caregiver. I am a relatively solitary person to start with, and the high-dose steroids I was put on pushed me further into self-isolation, moodiness and not infrequent depression.

As my recovery spirals up and down, I struggle to have hope. The dark and vibrating pain is balanced by bliss when the pain is not there that day, or at that moment. I appreciate my family and friends who have reached out to support me. But I often decline their calls or texts, not wanting to talk about what I consider a weakness of my body and spirit to heal my own personal plague.

I suspect that what I am going through, to a large degree, is what the whole world is going through right now. We have hope that we will survive along with our family and neighbors. We have the physical pain of atrophy from sitting and waiting. We have the emotional pain of helplessness. We wonder whether our immune system and spirit will survive or become a victim of this assault.

A resident of Chilmark for 20 years, I practiced yoga and meditation for many years with Megan Grennan, who led a group of devoted students. Today the Island community is privileged to have perhaps the highest number of yoga teachers per capita probably in the world. Along with meditation comes the concept that positive thoughts can heal and negative, depressing vibrations feed bad outcomes.

This is not a new concept to me as a fisherman. Going out at night to Chappy with Ed Amaral, a derby hall-of-famer who took me under his fishing tutelage many years ago, he taught me about having a positive attitude even if there are no birds, no slicks and a storm has likely driven the fish into deeper water. He told me repeatedly, and I learn from repetition, that as long as there is water we have a chance. In this pandemic, there is air all around us, but some will lose the ability to breathe.

Can positive thoughts really affect the outcome? My experience with my own complications might argue against it, but maybe not. My life is changing in ways that will be long lasting even after I heal and the Earth sheds this virus. I now talk to my 90-year-old dad in San Francisco and my brother in Napa and sister in Los Angeles almost every day on the phone. I used to have a brief phone or email conversation with them once every month or two at the most.

I talk to my nephew, Adam, who came out on the positive side of brain cancer treatment when he was in high school and is now finishing his junior year online at UCLA. He wants to go into medicine, and I talk to him about naturopathic healing because he is an old soul and I know he can be a healer. There are few avenues in conventional medicine that allow a practitioner to use compassion along with science to heal.

My wife is my rock when I am unable to be independent. She resists my attempts to fall into depression and complete self-isolation. She holds me up above the surface of the ocean, so I am still breathing.

My hat (surgical cap) is off to the incredible nurses, food service workers, patient transporters and other hospital staff who have taken care of me in these difficult times with true compassion. How many are voluntarily there versus being mandated by hospital administration to work or be fired? They did not sign up for wartime jobs, putting their lives and the lives of their families at risk. They are the true unnamed heroes.

I left Martha’s Vineyard in 2014, and retired from working full-time in the burn unit in Seattle three years ago. If I wasn’t struggling myself, I hope that I would have offered my services to return voluntarily to help out in this crisis. But it is way too self-admiring to say that I definitely would have.

Just before my own surgery, I returned from two weeks in Nepal working with burn patients and burn caregivers as I have for the past three years. Each day, two or three patients would die, mostly older women whose clothes ignited while they were kneeling down facing away from open fires warming themselves during the cold village winter. It seems like it would be so easy to prevent these deaths with education, less flammable clothing, barriers around the fires, and, eventually but long time coming, electricity.

The coronavirus is much more of an enigma, and has no preference for economic status, religion or race. We are still identifying its virulence and mutability, the first step in finding a solution. It will and already has changed the world and how humans interact with each other. It will likely become a factor when young people decide whether to pursue a career in nursing or medicine.

When enough people in our neighborhood, our nation and our world are touched by the death of a loved one, I wonder if that might help persuade us to oppose political and economic leaders who value money over life and who pillage the earth and nature.

Putting aside for a moment the tragic deaths, let us hope that the lessons learned of fellowship and compassion, courage and hope will be among the positive outcomes of this catastrophe. Let us pray that economic capitalism and hubris will be illuminated yet again as false gods.

Dr. Gary Fudem is a retired plastic surgeon who formerly had a longtime practice on Martha’s Vineyard.

Comments

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 06:13

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Jim feiner Chilmark

Gary thank you for sharing your story and I wish you a speedy and full recovery. There’s a lot of really important lessons to be learned here and now. For me it is remembering the importance of friends and community, that it is easy and good to help our neighbors and look out for those of us who are less fortunate and that staying focused and positive is the roadway through to the other side. We will get past this and go fishing perhaps with a new appreciation for the calmness of the seas and the fish that swim.

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 07:55

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Marcia West Tisbury

Dr. Fudem,
You are a clearly one of the Healers. In venturing beyond professional strictures in this poignant and personal offering, and speaking so openly from the realm of “both sides now”, you will continue to touch many. Even—or maybe even especially—from your confinement. You are not as isolated as it must feel at times.
Thank you. Your words spread open the wings of wisdom and compassion.
I am grateful.

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 08:08

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Dick Aquinnah

As someone who has experienced, and returned from, both illness and depression, I deeply appreciate your words. And as a fisherman, who also has seen the good times and the fair, and of course those string of nights when the sea might be accused of being perfectly emptied of life, I know the continued hopefulness in the act. As Ed Amaral and others have said, it's despite every doubt, every negative assessment, that we head out again to "make our own fishing reports."

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 09:17

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Vicki West Tisbury

Dear Gary,
I happened upon your heartfelt and beautifully written story. There are lessons to be learned about kindness, compassion, the fragility of the earth and humankind, the capacity for goodness if we will allow our fears to fall away. Thank you for taking the time to reach out and offer an important reminder. We live in a special place. Let's protect and nurture the spirit of the island.

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 16:01

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Ida G Millman Storrs Mansfield CT

"The coronavirus is much more of an enigma, and has no preference for economic status, religion or race."
I've read that those near to and in poverty, and those who are 'different,' suffer more from this pandemic than most of us who read your thoughtful letter - including many on the V, I would guess. Not the preference of the virus, no doubt, but from our preferences regarding the payment for and the distribution of health care in this country.

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 20:25

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Bob Dusa Oak Bluffs

The candid expression of your personal experience parallels and brings to mind the lyrics of a Golden Oldie by the Troggs: "I feel it in my fingers, I feel it in my toes. Well love is all around me...and so the feeling grows. It's written on the wind, it's everywhere I go. So if you really love me, come on and let it show."

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 20:47

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Deb kelley Shrewsbury,ma

My dear sweet friend. I am so sorry for all that you have gone through. It has been a great honor to have worked with you. You taught me so much. I only hope that you have turned the corner for the better. You are in my prayers. All my love your crazy nurse Deb

Submitted by Anonymous (not verified) on Fri, 04/10/2020 - 21:31

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Jane Gallagher Wallace Viera, Florida

Gary, I am so proud and blessed to have called you a friend. Your words touched my heart and pretty much echo my own feelings. I am sorry to hear of your struggles...and I will keep you in my prayers for healing. Thank you for sharing. If there is anyway I can help you, please reach out. God bless your sweet heart!
[email protected]

Submitted by Anonymous (not verified) on Sat, 04/11/2020 - 11:49

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Claudia Macedo Brazil/MV

Gary, Lew and I are still waiting for your visit here in Brazil, so get better quickly by thinking good thoughts, and respecting your limits for the time being. And remember you promised me several years ago to take me as a volunteer physical therapist to one of your missions! I am ready to go when you are. Will be sending a lot of healing light your way. Best to you! Claudia and Lew

Submitted by Anonymous (not verified) on Mon, 04/13/2020 - 10:47

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Ellie Worcester ma

The first time I met you was at City Hospital. I always enjoyed working with you. I'm sorry to hear all you have been going through. Sending get well wishes and prayers. Glad that you have an extended support system and your own loving personal flotation device as you weather this storm. Better days are coming.
Ellie

Submitted by Anonymous (not verified) on Mon, 04/13/2020 - 12:31

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Mary-Beth Northboro, Ma

You have truly been an angel for so many of your patients over the years. Always fighting for what is best for them.
I'm saddened to learn of your recent struggles. It is not for me or anyone to try to understand why the angels on the earth seem to need to overcome such hardships. I do know there is always a reason even if it is unclear now and seems so obviously undeserved. Someday you will look back and be amazed at how much you have overcome. Call on your guidance from above for peace and comfort and know your soul has "got this".
I'm glad you have a loving wife by your side to comfort you. Smell the beautiful vineyard air and feel the sunshine.
You have touched so many lives for the better and we all send you love, light and positive energy.

Submitted by Anonymous (not verified) on Tue, 04/14/2020 - 16:12

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Dave Fogarty West Virginia

Gary, love starts when another persons needs become more important than your own. Giving looking for nothing in return. It’s not 50-50, it’s 100 - 0. I love you, Dave

Submitted by Anonymous (not verified) on Wed, 04/15/2020 - 12:57

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eric cooperstown, ny

Thank you Gary. Hope your comments go viral and replace the current viral.
Good luck and I will add my prayers.

Submitted by Anonymous (not verified) on Fri, 04/17/2020 - 20:33

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Cristin Concord, MA

Dr. Gary, Thank you for this perspective. You are always in our hearts and on our minds. You bring sunshine, peace and healing wherever you go. There is a world here sending it back to you. It’s your turn. Be good to you. Much Love, Cristin

Submitted by Anonymous (not verified) on Fri, 07/30/2021 - 17:39

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A-Lan von Hornlein Reynolds Tucson, AZ

Gary, Though we haven't spoken or seen each other since College, over the years I have thought about you from time to time, and thought about what a good friend you were all those years ago. I am very sorry you have been struggling with your health, and I send you all my positive thoughts for a strong recovery. Recently our high school in San Francisco has been in the news, and that prompted me to google you. I read a number of your essays and smiled to think how the wonderful core of you was thankfully unchanged by the medical juggernaut upon which you chose to embark. Even being a witness to so much loss has not changed your good heart. I hope you can draw strength from that astonishing resource inside you. Carry on and prosper Gary! A-Lan

Submitted by Anonymous (not verified) on Sun, 03/27/2022 - 17:03

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Alice Lynch Holden, Ma

Dear Gary, you are a beautiful writer. A kind and gentle soul. I am happy to have worked with you in the Burn Unit both at Worcester City Hospital and U Mass. I learned so much from you. Thank you. I pray you are well.

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